Digestive Diseases News
Winter 2009

Additional Resources

New Publications

Alagille syndrome is an inherited disorder in which the liver contains too few hepatic ducts. Bile builds up in the liver, which can lead to liver damage and possibly liver failure. A complex disorder, Alagille syndrome affects other body systems, including the heart, kidneys, blood vessels, eyes, face, and skeleton. Alagille syndrome occurs in about one in every 70,000 births, with symptoms usually appearing in the first 2 years of life. The National Digestive Diseases Information Clearinghouse’s (NDDIC) new fact sheet, Alagille Syndrome, provides consumers and health care providers with useful information about the causes, symptoms, diagnosis, treatment, and long-term outlook for people with Alagille syndrome.

This new fact sheet is available at www.digestive.niddk.nih.gov.

Updated Fact Sheets

The NDDIC has updated the following fact sheets:

• Abdominal Adhesions
• Appendicitis
• Cirrhosis
• Colonoscopy
• Cyclic Vomiting Syndrome
• Flexible Sigmoidoscopy
• Indigestion
• Inguinal Hernia
• Irritable Bowel Syndrome in Children
• Ménétrier Disease
• Primary Biliary Cirrhosis
• Virtual Colonoscopy

These publications are available at www.digestive.niddk.nih.gov.

Information about Pediatric Digestive Diseases: CDHNF and NASPGHAN

Educational resources about gastrointestinal, liver, and nutritional issues for children and their families are available through the Children’s Digestive Health and Nutrition Foundation (CDHNF) and its partner organization, the North American Society for Pediatric Gastroenterology, Hepatology and Nutrition (NASPGHAN).

The CDHNF’s Digestive Health for Life Campaigns aim to improve the quality of life and health outcomes for children suffering from four specific disorders: celiac disease, eosinophilic esophagitis, inflammatory bowel disease, and gastroesophageal reflux disease. Information about the symptoms, diagnosis, management, and medical therapy for these disorders is available at the CDHNF’s website, www.cdhnf.org.

Titles available from the NASPGHAN include Alpha-1-Antitrypsin Deficiency, Encopresis, Nutrition and Cystic Fibrosis, Fundoplication, and many more. Most publications are available in English, French, Portuguese, and Spanish. To find a local pediatric gastroenterologist, obtain more information, or download these fact sheets, go to www.naspghan.org.

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NIH Publication No. 09–4552
March 2009